Shwachman-Diamond Syndrome Foundation
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Dyskeratosis Congenita Outreach, Inc. is an international network of patients, caregivers, physicians and researchers. Since 2008 we have been connecting families with resources and providing support, love, encouragement and hope. Join our community today and help us continue this important mission. We are here to help, you are not alone. Read more about Welcome! DC Outreach, Inc.
Study enrolls families from North America that have at least one member with an IBMFS. The study includes individuals k.
The discussion forums for people affected by bone marrow failure diseases. Patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone! The first line of defense against bone marrow failure diseases. More about bone marrow failure diseases. You can exchange tips and s.
Register Now for our Family Conference. Education is the first step to managing this condition.
Welcome to the Shwachman-Diamond Syndrome Registry. Many patients have additional symptoms such as problems with growth, bone abnormalities, and frequent infections.
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Shwachman-Diamond Syndrome Foundation
Christine James
PO Box 44
Avon, New York, 14414
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Shwachman-Diamond Syndrome FoundationDESCRIPTION
Symptoms Features. NCI IBMFS Cohort Study. Fundraising Ideas and Tips. News Events. What is Shwachman-Diamond Syndrome? Shwachman Diamond Syndrome Foundation. Advocate for and find research towards improved treatment and a cure. Raise awareness of SDS in the medical community and general public. Provide educational and emotional support to patients and their families. Link families through the Internet and family conferences. Disseminate current medical information. Tough Mudder Run a Success.PARSED CONTENT
The website shwachman-diamond.org had the following on the site, "What is Shwachman-Diamond Syndrome? Shwachman Diamond Syndrome Foundation." We viewed that the website said " Advocate for and find research towards improved treatment and a cure." It also said " Raise awareness of SDS in the medical community and general public. Provide educational and emotional support to patients and their families. Link families through the Internet and family conferences. Tough Mudder Run a Success."SEEK SUBSEQUENT DOMAINS
Saturday, November 9, 2013. As of 2013, each of my boys has had over 25 BMBs each.
Zeldzaam maar niet alleen! Dit is de website van de Nederlandse patiëntenbelangenorganisatie. Klik hier voor het verslag. Digitale raadpleging Zorg naar gemeente.
Brandon will be an Uncle in July! His Brother and Heather are having a baby July 14th, his Sister and Tim are having a baby July 21. We hope you will join us at the. At the Detroit Zoo! Some of the other kids that have SDS are highlighted on the SDS Kids page. Brandon gets a poke every other day. He says his pokes make his blood behave.